*sapphoq healing tbi
Thursday, December 25, 2008
Falling 12/25/08
Some weeks ago I fell twice in one week.
My feet went out from under me one Saturday afternoon while walking and I fell flat on my back.
That was painful.
That Tuesday evening I took a hot shower in hopes of relieving the soreness in my back from falling a few days before.
I started feeling a bit odd and I noticed my field of vision getting spotty.
I managed to turn off the shower water and got out of the tub using the safety bar.
I went to grab the towel from the towel rack and at that point passed out.
When I came to, my elbow was shielding my head from the floor; I was on my right side; and my arms and legs-- particularly the left leg-- were shaking.
I managed to drag myself to the toilet bowl where I sat until I was able to walk.
Mate was in bed and had missed the whole thing.
We do keep a phone immediately outside the bathroom door for emergency purposes but all I could think about was the bright lights in the emergency room and not wanting to subject myself to all of that. So I didn't go.
The next day I was informed by the primary care doc that I have shower syncope. Basically that means I can faint in or around hot showers. Whatever.
A couple weeks later and I am still sore and having some rather painful right-sided back spasms. As long as I don't get up, shift positions, shit, or breathe I am okay. Back to the primary care doc's. I am starting physical therapy next week.
Meanwhile I have my tens unit running during awake hours. That helps the misery somewhat.
sapphoq healing t.b.i.
My feet went out from under me one Saturday afternoon while walking and I fell flat on my back.
That was painful.
That Tuesday evening I took a hot shower in hopes of relieving the soreness in my back from falling a few days before.
I started feeling a bit odd and I noticed my field of vision getting spotty.
I managed to turn off the shower water and got out of the tub using the safety bar.
I went to grab the towel from the towel rack and at that point passed out.
When I came to, my elbow was shielding my head from the floor; I was on my right side; and my arms and legs-- particularly the left leg-- were shaking.
I managed to drag myself to the toilet bowl where I sat until I was able to walk.
Mate was in bed and had missed the whole thing.
We do keep a phone immediately outside the bathroom door for emergency purposes but all I could think about was the bright lights in the emergency room and not wanting to subject myself to all of that. So I didn't go.
The next day I was informed by the primary care doc that I have shower syncope. Basically that means I can faint in or around hot showers. Whatever.
A couple weeks later and I am still sore and having some rather painful right-sided back spasms. As long as I don't get up, shift positions, shit, or breathe I am okay. Back to the primary care doc's. I am starting physical therapy next week.
Meanwhile I have my tens unit running during awake hours. That helps the misery somewhat.
sapphoq healing t.b.i.
Labels: a.b.i., falling, physical therapy, shower syncope, syncope, t.b.i., thinking, traumatic+brain+injury
¶ 7:46 PM 0 comments links to this post
Saturday, May 10, 2008
T.B.I. on SecondLife and on-going VESID stupidity
I took a break from blogging for a bit in order to explore SecondLife(trademark owned by Linden Labs)-- a virtual world created by Linden Labs. If anyone is interested, well then you can go check it out at:
http://www.secondlife.com/join/?u=492430f4263844fdb2cb9ef952ebf4a1
or at the potentially less threatening:
http://www.secondlife.com/?u=492430f4263844fdb2cb9ef952ebf4a1
and for those of you who aren't interested, obviously you don't gotta. End of unpaid commercial.
Anyways, my avatar (a little figure in clothing used to represent me in Second Life, thus from here on in will be referred to as "my avie" or simply "I" -- past English teachers be dammed) got to pick a gender and some clothing, went through utter confusion of orientation, and then was deposited along with other newbies at a Welcome Center. From there, my avie went off exploring. SecondLife is total eye candy in 3D.
After flying around for a bit and collecting a bunch of free clothes, I found that I was lonely for human communication. I went to some 12-step meetings (we're everywhere!) and found a few folks there to talk to. I began studying the events notices, joined a few groups, bought a bit of land. I began my first brain-damaged experimentation with 3D building and started going to events and classes regularly.
My avie got a job as a stripper in a club, something for which I make no apologies. The Lindens (money in SecondLife) are good. Real life mate doesn't care what I do in SecondLife. Dancing is varied and automated. The mobility and vertigo problems which plague me in real life are absent there. Plus, like most other avies, my avie is younger in appearance, skinnier, hotter, and has better hair than I do!
Besides exotic dancing and other events, I also found that the Asperger's community is alive and well on S.L. That made me happy and I now have some friends to hang with who do not expect great social feats from me. Many of them have some of the same passions that I do and that is excellent!
And yes, there is a t.b.i. group on SecondLife. We meet usually on Saturday mornings S.L. time at a comfortable and extravagant 3D clubhouse on a beach. The house is situated on an island. There is the ocean right there, a pleasant deck, several dogs, the meeting room itself, and offices upstairs. The man who facilitates the t.b.i. group lives in the States. He is very welcoming. I immediately found myself at home there.
When I told him about the most recent VESID stupidity, he was appalled and asked me if I have a case manager, case worker, or service coordinator. I am not eligible for Medicaid and thus not eligible for the T.B.I. waiver in my state (a situation which pisses me off-- the financial hit we have taken from my car accident and subsequent loss of career has been astronomical) and so I could not navigate the system well enough to get a Service Coordinator. I had tried but nothing much happened there. The facilitator-- also a T.B.I. survivor-- offered to meet with his case manager in order to seek out information for me and will be checking back with me soon. He also suggested that I call the Office of the Aging and the United Way in my county. I hadn't thought of that. More on the hunt for service coordination as it evolves.
The last time I had spoken with the job handler (a young woman who means well I suppose but who is young enough to have a MySpace account under her own legal name) she expressed grave "concern" over the latest two week bout of vertigo. This should not have been news to her or to anyone else related to VESID. It has been documented in my records that I have benign positional vertigo. The benign means it isn't a tumor or anything causing it. The positional means it is outside of myself, that is to say that the room/the world slides to the left. Vertigo means dizziness of a sort. Thus, I am not dizzy. The world is dizzy. I am used to it. I consider my 24 hour vertigo to me similar to allergies. And the occasional attack--where the world dips and spins madly-- to be akin to a common cold.
The attacks are annoying. The singular medication which the doctor demands I take during the worst of the attacks is annoying. The med leaves me able to navigate my home looking like someone who is slightly tipsy rather than totally plastered. There is not much that I can accomplish during an attack. Feeling miserable, I spend a bit more time sleeping than I usually do. Although I cannot do what I used to do, I certainly am not "home watching television." (That is what most voc-rehab counselors assume that folks with disabilities not slaving in sheltered workshops are doing with their days.) During the attacks, I am too miserable to even consider much teevee or much of anything else. So sleeping fills the bill. And serves to keep me from descending into total fatigue afterwards.
Consequently, when the job handler expressed her cloying concern over my latest two week attack I was not feeling a need for sympathy. I was feeling pissed off. And I knew that her concern was a smokescreen for another message. I may be brain damaged but I am NOT stupid. The job handler went on to inform me that until I got a doctor's note saying I am healthy enough to be nagged by her on a regular basis over where I had put in job applications and gotten interviews that the VESID counselor was putting my case on hold. I asked her, "Is the VESID counselor paying for my doctor's visit to obtain such a note?" Her answer was obviously no. "Well then, the VESID counselor will have to wait until I go to the doctor anyways for such a note. Do what you have to do." Shit. The primary care doc does not require me to see him before, during, or after these attacks. And as I've said already, vertigo to me is like allergies and colds.
I thought that would be the end of it until I delivered the note. But no. The job handler called my answering machine twice more. I didn't return the calls because: 1. a close friend who is also an addict was in the hospital and I was busy in a daily fight for her to get adequate pain relief, 2. I figured if my "case" was on hold then that meant that I didn't have to deal with the job handler, and 3. I just plain didn't feel like it. Angry? Oh hell yes. I was angry and I still am. I am not grateful for the crumbs. I can't get Walmart's to hire me, never mind any agency that offers jobs in my previous career. Hell. I can't even get the local newspaper to agree to give me a route. And I intensely dislike cloying concern and people nagging me for information about exactly where I've applied for work. To top it off, I am at the point where I am not sure that I am able to get back to work of any description. What part of, "I don't fucking feel well enough to do anything for four hours a day, never mind eight hours" is not clear English?
I am not a quitter by nature. I am tired of VESID, tired of incessant demands, tired of nagging whiny voices, tired tired tired. The shrink who understands t.b.i. has maintained from the start of all of this foolishness that the original plan is NOT to work even part-time until a 55b/c job comes through with the state. He tells me repeatedly that the 55b/c program expects me to be a fuck-up (not in so many words, he says it nicer) because I will be hired with the knowledge that I am disabled. With the 55b/c program, I will provided with a job I can do and a salary that I can live on. And the added benefit because I will be hired as a fuck-up, I would really have to be outrageous in order to get fired. The problem I am having in my interviews is that it is obvious that I have some serious impairments and no company wants to deal with a new employee who has vision problems, auditory processing problems, non-existent capacity for multi-tasking, can't navigate stairs well (the vertigo), and is at risk for falling in spite of the braces and cane. And let's not forget the fatigue.
So there is SecondLife. I have a sort of goal there to amass enough Lindens to go into virtual business for myself. And there is VESID and the professional and para-professional paid "helpers" associated with VESID. And there is my life and there are my crumpled dreams.
http://www.secondlife.com/join/?u=492430f4263844fdb2cb9ef952ebf4a1
or at the potentially less threatening:
http://www.secondlife.com/?u=492430f4263844fdb2cb9ef952ebf4a1
and for those of you who aren't interested, obviously you don't gotta. End of unpaid commercial.
Anyways, my avatar (a little figure in clothing used to represent me in Second Life, thus from here on in will be referred to as "my avie" or simply "I" -- past English teachers be dammed) got to pick a gender and some clothing, went through utter confusion of orientation, and then was deposited along with other newbies at a Welcome Center. From there, my avie went off exploring. SecondLife is total eye candy in 3D.
After flying around for a bit and collecting a bunch of free clothes, I found that I was lonely for human communication. I went to some 12-step meetings (we're everywhere!) and found a few folks there to talk to. I began studying the events notices, joined a few groups, bought a bit of land. I began my first brain-damaged experimentation with 3D building and started going to events and classes regularly.
My avie got a job as a stripper in a club, something for which I make no apologies. The Lindens (money in SecondLife) are good. Real life mate doesn't care what I do in SecondLife. Dancing is varied and automated. The mobility and vertigo problems which plague me in real life are absent there. Plus, like most other avies, my avie is younger in appearance, skinnier, hotter, and has better hair than I do!
Besides exotic dancing and other events, I also found that the Asperger's community is alive and well on S.L. That made me happy and I now have some friends to hang with who do not expect great social feats from me. Many of them have some of the same passions that I do and that is excellent!
And yes, there is a t.b.i. group on SecondLife. We meet usually on Saturday mornings S.L. time at a comfortable and extravagant 3D clubhouse on a beach. The house is situated on an island. There is the ocean right there, a pleasant deck, several dogs, the meeting room itself, and offices upstairs. The man who facilitates the t.b.i. group lives in the States. He is very welcoming. I immediately found myself at home there.
When I told him about the most recent VESID stupidity, he was appalled and asked me if I have a case manager, case worker, or service coordinator. I am not eligible for Medicaid and thus not eligible for the T.B.I. waiver in my state (a situation which pisses me off-- the financial hit we have taken from my car accident and subsequent loss of career has been astronomical) and so I could not navigate the system well enough to get a Service Coordinator. I had tried but nothing much happened there. The facilitator-- also a T.B.I. survivor-- offered to meet with his case manager in order to seek out information for me and will be checking back with me soon. He also suggested that I call the Office of the Aging and the United Way in my county. I hadn't thought of that. More on the hunt for service coordination as it evolves.
The last time I had spoken with the job handler (a young woman who means well I suppose but who is young enough to have a MySpace account under her own legal name) she expressed grave "concern" over the latest two week bout of vertigo. This should not have been news to her or to anyone else related to VESID. It has been documented in my records that I have benign positional vertigo. The benign means it isn't a tumor or anything causing it. The positional means it is outside of myself, that is to say that the room/the world slides to the left. Vertigo means dizziness of a sort. Thus, I am not dizzy. The world is dizzy. I am used to it. I consider my 24 hour vertigo to me similar to allergies. And the occasional attack--where the world dips and spins madly-- to be akin to a common cold.
The attacks are annoying. The singular medication which the doctor demands I take during the worst of the attacks is annoying. The med leaves me able to navigate my home looking like someone who is slightly tipsy rather than totally plastered. There is not much that I can accomplish during an attack. Feeling miserable, I spend a bit more time sleeping than I usually do. Although I cannot do what I used to do, I certainly am not "home watching television." (That is what most voc-rehab counselors assume that folks with disabilities not slaving in sheltered workshops are doing with their days.) During the attacks, I am too miserable to even consider much teevee or much of anything else. So sleeping fills the bill. And serves to keep me from descending into total fatigue afterwards.
Consequently, when the job handler expressed her cloying concern over my latest two week attack I was not feeling a need for sympathy. I was feeling pissed off. And I knew that her concern was a smokescreen for another message. I may be brain damaged but I am NOT stupid. The job handler went on to inform me that until I got a doctor's note saying I am healthy enough to be nagged by her on a regular basis over where I had put in job applications and gotten interviews that the VESID counselor was putting my case on hold. I asked her, "Is the VESID counselor paying for my doctor's visit to obtain such a note?" Her answer was obviously no. "Well then, the VESID counselor will have to wait until I go to the doctor anyways for such a note. Do what you have to do." Shit. The primary care doc does not require me to see him before, during, or after these attacks. And as I've said already, vertigo to me is like allergies and colds.
I thought that would be the end of it until I delivered the note. But no. The job handler called my answering machine twice more. I didn't return the calls because: 1. a close friend who is also an addict was in the hospital and I was busy in a daily fight for her to get adequate pain relief, 2. I figured if my "case" was on hold then that meant that I didn't have to deal with the job handler, and 3. I just plain didn't feel like it. Angry? Oh hell yes. I was angry and I still am. I am not grateful for the crumbs. I can't get Walmart's to hire me, never mind any agency that offers jobs in my previous career. Hell. I can't even get the local newspaper to agree to give me a route. And I intensely dislike cloying concern and people nagging me for information about exactly where I've applied for work. To top it off, I am at the point where I am not sure that I am able to get back to work of any description. What part of, "I don't fucking feel well enough to do anything for four hours a day, never mind eight hours" is not clear English?
I am not a quitter by nature. I am tired of VESID, tired of incessant demands, tired of nagging whiny voices, tired tired tired. The shrink who understands t.b.i. has maintained from the start of all of this foolishness that the original plan is NOT to work even part-time until a 55b/c job comes through with the state. He tells me repeatedly that the 55b/c program expects me to be a fuck-up (not in so many words, he says it nicer) because I will be hired with the knowledge that I am disabled. With the 55b/c program, I will provided with a job I can do and a salary that I can live on. And the added benefit because I will be hired as a fuck-up, I would really have to be outrageous in order to get fired. The problem I am having in my interviews is that it is obvious that I have some serious impairments and no company wants to deal with a new employee who has vision problems, auditory processing problems, non-existent capacity for multi-tasking, can't navigate stairs well (the vertigo), and is at risk for falling in spite of the braces and cane. And let's not forget the fatigue.
So there is SecondLife. I have a sort of goal there to amass enough Lindens to go into virtual business for myself. And there is VESID and the professional and para-professional paid "helpers" associated with VESID. And there is my life and there are my crumpled dreams.
Labels: employment, O.V.R., ovr, professionals, Second Life, SecondLIfe, t.b.i., thinking, traumatic+brain+injury, vertigo, VESID, vision, vocational rehabilitation
¶ 1:22 PM 0 comments links to this post
Monday, November 12, 2007
Four Years
Last week I passed my four year anniversary since my car accident and my traumatic brain injury. I thought somehow I would be working by now. Although I am closer to working now than I've been. Yeah, I am writing a novel and that is cool. To me though, that doesn't really "count" until the contract has been signed and an advance check is in my sweaty hands. I have one potential job substituting for a dishwasher should they get sick and another possibility to work for a friend who is manager at a restaurant. I don't think I will mind washing dishes once in awhile. Working at the friend's restaurant-- well, I gotta start over again somewhere. I haven't even been able to get an interview to deliver newspapers. So I will take what I can get and remember it is just for now, just until I can find something else.
I still have my vision problems, the mild expressive aphasia, and the occasional vertigo. As far as medical experts say, traumatic brain injury is permanent. We improve over time at some stuff, especially if we keep working at it but the basic brain injury itself is there and will be there. Folks say that "the brain can regenerate isn't that amazing?" sort of thing until I am sick of hearing it. Again, I will tell yas that yes, some neurons can regenerate however they do not always reconnect to the correct halves [causing cognitive slowdowns] or at all to anything [causing a central nervous system tremor which yes I do have].
I will never be who I was. I won't lie for the sake of the comfort of others and claim that who I am is a new improved model because it isn't. I don't believe that "all things happen for a reason" or that "I'm right where some god wants me to be" or that "there are no true coincidences." What I think is that life is sacred-- neither fair nor unfair-- and that it is the finite part of our selves that requires and maybe even demands meaning, thus we create it. I don't particularly feel bound by any compulsion to have reasons and lessons for learning. I think that life is far beyond our petty little explanations. Most other folks I know find comfort in believing that there is some sort of grand plan. That stuff doesn't help me though so I dumped it.
Some things have improved. My hearing-- which was supersonic before my accident and right on the borderline of needing a hearing aid or two afterwards-- has re-established itself into the supersonic category as per the last audiology test this summer. The addition of a c-pap machine after two sleep studies and a diagnosis of sleep apnea has really helped me to have a life [although it takes me much longer than average to get into REM sleep, at least I am dreaming again at night]. I keep working on my aphasia and now most folks don't notice it. I got involved with an incredimail creators' group [thanks Jeremy Crow] and that has been of immense help to me in restoring motivation.
If the accident didn't happen, we would have been better off financially and I would not have had my career viciously kicked out from under me. If suffering builds character and strength, I certainly could have done with a bit less of both of those things. In a perfect world, folks who smoke pot would be picked up by the magic yellow submarine bus and driven anywheres they had to go. [The driver who ran my car into a house was high on marijuana]. In a perfect world, we wouldn't need lawyers to protect us from our places of employment after we get hurt, little kids wouldn't be abused or die of starvation and diseases and all stuff like that. But it is not a perfect world. So I just have to do the best I can [most days] with what I got. As Nathaniel Branden would say, "It is what it is."
By this time next year, I hope that my novel will be written and submitted. I also hope to be working at least part-time at a job that I can tolerate. Still be married and in love with my husband and he with me. Saving money for my next cross-country trip. [I want to go every year or every two years for the rest of my life]. And still enjoying my animals, the woods, and life.
spike
I am writing a novel, as I've said before and thus am behind once again in visiting all of your blogs and commenting. Sorry for that. I will get to visiting all of yas to leave comments over the next few weeks or so.
And anyone who has a dog, if you haven't watched The Dog Whisperer, you ought to give it a whirl. He has most excellent ideas about dog psychology and communication. My current dog who is really angelic has become even more perfect since I started doing some of the things he suggests.
I still have my vision problems, the mild expressive aphasia, and the occasional vertigo. As far as medical experts say, traumatic brain injury is permanent. We improve over time at some stuff, especially if we keep working at it but the basic brain injury itself is there and will be there. Folks say that "the brain can regenerate isn't that amazing?" sort of thing until I am sick of hearing it. Again, I will tell yas that yes, some neurons can regenerate however they do not always reconnect to the correct halves [causing cognitive slowdowns] or at all to anything [causing a central nervous system tremor which yes I do have].
I will never be who I was. I won't lie for the sake of the comfort of others and claim that who I am is a new improved model because it isn't. I don't believe that "all things happen for a reason" or that "I'm right where some god wants me to be" or that "there are no true coincidences." What I think is that life is sacred-- neither fair nor unfair-- and that it is the finite part of our selves that requires and maybe even demands meaning, thus we create it. I don't particularly feel bound by any compulsion to have reasons and lessons for learning. I think that life is far beyond our petty little explanations. Most other folks I know find comfort in believing that there is some sort of grand plan. That stuff doesn't help me though so I dumped it.
Some things have improved. My hearing-- which was supersonic before my accident and right on the borderline of needing a hearing aid or two afterwards-- has re-established itself into the supersonic category as per the last audiology test this summer. The addition of a c-pap machine after two sleep studies and a diagnosis of sleep apnea has really helped me to have a life [although it takes me much longer than average to get into REM sleep, at least I am dreaming again at night]. I keep working on my aphasia and now most folks don't notice it. I got involved with an incredimail creators' group [thanks Jeremy Crow] and that has been of immense help to me in restoring motivation.
If the accident didn't happen, we would have been better off financially and I would not have had my career viciously kicked out from under me. If suffering builds character and strength, I certainly could have done with a bit less of both of those things. In a perfect world, folks who smoke pot would be picked up by the magic yellow submarine bus and driven anywheres they had to go. [The driver who ran my car into a house was high on marijuana]. In a perfect world, we wouldn't need lawyers to protect us from our places of employment after we get hurt, little kids wouldn't be abused or die of starvation and diseases and all stuff like that. But it is not a perfect world. So I just have to do the best I can [most days] with what I got. As Nathaniel Branden would say, "It is what it is."
By this time next year, I hope that my novel will be written and submitted. I also hope to be working at least part-time at a job that I can tolerate. Still be married and in love with my husband and he with me. Saving money for my next cross-country trip. [I want to go every year or every two years for the rest of my life]. And still enjoying my animals, the woods, and life.
spike
I am writing a novel, as I've said before and thus am behind once again in visiting all of your blogs and commenting. Sorry for that. I will get to visiting all of yas to leave comments over the next few weeks or so.
And anyone who has a dog, if you haven't watched The Dog Whisperer, you ought to give it a whirl. He has most excellent ideas about dog psychology and communication. My current dog who is really angelic has become even more perfect since I started doing some of the things he suggests.
Labels: t.b.i., tbi, thinking, traumatic+brain+injury
¶ 12:09 AM 0 comments links to this post
Monday, March 26, 2007
PLANNING 3/26/07
I am going away cross-country. When planning an itinerary, I discovered that thinking ahead in a linear fashion [the way I used to] was no longer second nature. [Drat the damage to my executive functions.] Instead, my t.b.i.-related random chaotic style of doing things has infiltrated far beyond the boundaries of household organization. Yeah, that is what travel agents are for.
Unfortunately, the travel agent was doing a good job of imitating a nervous wreck during my three hour session with her. She was in a mad rush to get me out of there. At the end, she threw the itinerary on the desk and said, "This is it. If you sign this, there can be no changes." It appears that I have already posted about this singularly difficult encounter with the forces of order. Onward ho.
Upon getting everything home, I was informed that no, I did not have to be back for a commitment at the end of April. That commitment is at the end of May. I also realized that one of the connections that the harried travel agent had provided me with was of the "no way Hosea" variety-- as in, no way could I move fast enough for that. I took the weekend off to recuperate and to think about my options.
This morning I got on the phone to fix and amend and alter what I had to.
The upshot after spending a morning's worth of aggravation and phone calls is that I will be leaving a day earlier than I thought and coming back four days later. And renting a car for a day in order to make it to one spot which wasn't doable without spending most of a night in a train station waiting for a transfer.
Now I have several choices. I can continue to grieve the change in my thinking processes-- a total waste of time. I've done enough of that. Something in my inner core was permanently altered by my whacked out neurological landscape. I've known this since I got out of the car after the accident. I can accept it without having to wear the shackle of must stamp the seal of approval on it today. I can bitch and moan. That option is also rather unattractive. A constant diet of cognitive stew is boring. There are a few other options I'm sure that I am missing here. What I am putting my self-determination to is the idea of being happy that I am able to go on an extensive vacation. Because not everyone can.
sapphoq healing t.b.i.
sapphoq
executive function
frontal lobe damage
Unfortunately, the travel agent was doing a good job of imitating a nervous wreck during my three hour session with her. She was in a mad rush to get me out of there. At the end, she threw the itinerary on the desk and said, "This is it. If you sign this, there can be no changes." It appears that I have already posted about this singularly difficult encounter with the forces of order. Onward ho.
Upon getting everything home, I was informed that no, I did not have to be back for a commitment at the end of April. That commitment is at the end of May. I also realized that one of the connections that the harried travel agent had provided me with was of the "no way Hosea" variety-- as in, no way could I move fast enough for that. I took the weekend off to recuperate and to think about my options.
This morning I got on the phone to fix and amend and alter what I had to.
The upshot after spending a morning's worth of aggravation and phone calls is that I will be leaving a day earlier than I thought and coming back four days later. And renting a car for a day in order to make it to one spot which wasn't doable without spending most of a night in a train station waiting for a transfer.
Now I have several choices. I can continue to grieve the change in my thinking processes-- a total waste of time. I've done enough of that. Something in my inner core was permanently altered by my whacked out neurological landscape. I've known this since I got out of the car after the accident. I can accept it without having to wear the shackle of must stamp the seal of approval on it today. I can bitch and moan. That option is also rather unattractive. A constant diet of cognitive stew is boring. There are a few other options I'm sure that I am missing here. What I am putting my self-determination to is the idea of being happy that I am able to go on an extensive vacation. Because not everyone can.
sapphoq healing t.b.i.
sapphoqexecutive functionfrontal lobe damageLabels: executive function, t.b.i., tbi, thinking, traumatic+brain+injury, travel
¶ 1:00 PM 0 comments links to this post
Wednesday, March 14, 2007
SIGN, SIGN, EVERYWHERE'S A SIGN 3/14/07
When I first came down with my traumatic brain injury, I became very self-focused out of necessity. Nothing was automatic anymore. I had to think constantly about what I was doing-- everyday things that we take for granted required excessive thinking. And so I navigated my way through a world that had suddenly transformed itself into an alien landscape. The familiar became strange. I didn't recognize my own self.
My taste in music changed. Later, when I was able to tolerate reading, I found that I no longer enjoyed the same kinds of books. New interests took over. I found that I could not assemble the old pieces of my old life. I had to reconstruct myself. And no one could do that for me.
It came to me that I had to force myself to think, even when not thinking would have been easier. I had to force myself to think about my future and what I wanted. I had to force myself to think about how to advocate for what I needed medically. In re-learning the patterns of living, I turned to the internet. I stumbled into a t.b.i. chatroom. In that chatroom, we spent many serious hours attempting to name the seven dwarves. I learned how to read t.b.i-typese. [None of us could spell worth a damn.] And with my new internet buddies, I learned how to laugh again.
The folks in the chatroom told me that I would have to be in charge of my own rehabilitation. I was getting vision therapy and physical therapy but no cognitive rehabilitation. Following the advice I was given in chat, I sought out various brain games on the internet. I became obsessed with Snood. And at a store, I found a large-screen hand-held Tetris. I also crocheted cotton washcloths and went to the gym as soon as I was able to. When I did get kicked out of cognitive art rehabilitation therapy months later, I continued the things I had been doing already. I discovered blogging and computer art. Now I am slowly learning how to animate. I have to think that through since I am unable to follow the directions as of yet.
Once or twice throughout my life, I have been accused of "thinking too much" as if that were a bad thing. Forcing myself to think has served me well in my own healing journey. Some days I sit and think about thinking. Like the sign says: Thinking really does tickle the brain cells.
sapphoq healing tbi
When I first came down with my traumatic brain injury, I became very self-focused out of necessity. Nothing was automatic anymore. I had to think constantly about what I was doing-- everyday things that we take for granted required excessive thinking. And so I navigated my way through a world that had suddenly transformed itself into an alien landscape. The familiar became strange. I didn't recognize my own self.
My taste in music changed. Later, when I was able to tolerate reading, I found that I no longer enjoyed the same kinds of books. New interests took over. I found that I could not assemble the old pieces of my old life. I had to reconstruct myself. And no one could do that for me.
It came to me that I had to force myself to think, even when not thinking would have been easier. I had to force myself to think about my future and what I wanted. I had to force myself to think about how to advocate for what I needed medically. In re-learning the patterns of living, I turned to the internet. I stumbled into a t.b.i. chatroom. In that chatroom, we spent many serious hours attempting to name the seven dwarves. I learned how to read t.b.i-typese. [None of us could spell worth a damn.] And with my new internet buddies, I learned how to laugh again.
The folks in the chatroom told me that I would have to be in charge of my own rehabilitation. I was getting vision therapy and physical therapy but no cognitive rehabilitation. Following the advice I was given in chat, I sought out various brain games on the internet. I became obsessed with Snood. And at a store, I found a large-screen hand-held Tetris. I also crocheted cotton washcloths and went to the gym as soon as I was able to. When I did get kicked out of cognitive art rehabilitation therapy months later, I continued the things I had been doing already. I discovered blogging and computer art. Now I am slowly learning how to animate. I have to think that through since I am unable to follow the directions as of yet.
Once or twice throughout my life, I have been accused of "thinking too much" as if that were a bad thing. Forcing myself to think has served me well in my own healing journey. Some days I sit and think about thinking. Like the sign says: Thinking really does tickle the brain cells.
sapphoq healing tbiLabels: cognition, t.b.i., tbi, thinking, traumatic+brain+injury, treatment
¶ 1:42 AM 0 comments links to this post
